Why Joleigh's Hope was Chosen
I had my daughter Joleigh Hope in November 2019. Because of severe preeclampsia, she was 9-weeks early and only weighed 3lbs 11oz. After staying in the NICU for 34 days she came home the day before my birthday. I had worked for Dawson County for 15 years before having Joleigh. They were kind enough to extend my leave to take care of her. In January for our visit at the doctor they noticed she wasn't gaining weight as fast as they would like. They told me just to change her formula and see how she did over the next couple of months. In March 2020 she had gained a little and it was time I returned to work. I left her with a friend of the family. Every day that week I would cry because I didn't feel like she was OK. My friend told me on the third day that something was definitely wrong with the baby. I pressed harder for her to be seen by a specialist. The next week she was admitted to the hospital for failure to thrive. They did several test and watched her weight gain for a week and sent us home on a different formula. My work was kind enough again to extend my leave and I stayed at home with her to observe her carefully and weigh her every day. She was still gaining weight slowly but still not where she needed to be and was in pain a lot. I would just sit and cry because I knew something was more wrong. I was supposed to return back to work on June 1, 2020. The last week of May she was readmitted to the hospital for failure to thrive. This time a team of doctors and specialist came in because her case was critical and they were worried she wouldn't make it. After several days, a lot of test, scopes & biopsies they diagnosed her with CSID. She’s missing the enzyme to break down sugars carbs and starches. This is why she wasn't gaining any weight her body was rejecting all of the nutrients that I was trying to give her. This was the first child in 15 years to be diagnosed with CSID by the Doctor who diagnosed her. This was my sign that it was time for me to end my career helping the senior community of Dawson County. This was the hardest decision I had ever made in my life. But I felt this was God telling me that it was time to take care of my own family especially the 9lb 8 month-old who depended solely on me. Since then, I have struggled depression & lacking my creativity. I saw some videos that really inspired me to do some research on sublimation. So I jumped right in and got a printer & press. So now I have "Joleigh's Hope Designs" and I'm working on getting it more up and running everyday. So far I've only been making shirts for family & friends but I hope it will grow and I can learn more as time goes. AND Joleigh now weighs 24lbs and is 22 months old! So, praying for my baby & my business to continue to grow and thrive! Thank you everyone for being part of this journey! I hope to not only gain a customer base but I hope to gain friendships as well! This is a GOD thing and he is in this 110%!